Meeting with Dr Park and todays physio WOW

We had our last appointment with Dr Park yesterday he said that Gracie is doing really well, he expects her to be walking with her walker within 6 months and then work toward Crutch/ stick walking after that there is a quite good chance that she will walk independantly providing she can isolate her foot movements which she can but wouldnt for Dr Park typical...lol....

we asked about the surgery and he said that she now has no signs of spacticity in her legs at all which is brilliant as she grows she may need some heelcord stretching or hamstring lengthening withing maybe 3-5 years time, which we expected at some point but basically as longas we keep stretching her ankles out all should be good there may be some need for serial casting at some point if the stretches and splints dont work but that we will not know yet.

he had to cut 60-65% of her nerves to release her spactisity but that is quite common as she is young she has the best chance of a bright future, we have to send videos of gracie to him every 6 months to be reviewed and will return next year to see Dr Park and to have some more physio and a splint change.

we are absolutely over the moon with this outcome with all the improvements she has made already such as her straight sitting being able to sit crossed legs her right arm improvements and her general awareness that i am positive has improved we are just excited to see what she will be able to do next.

We had a really good physio session today with beth too and grace was brilliant in her walker and only needed some minimal support around her hips which is amazing, she also got her new splints today some lovely day ones with ladybirds and flowers and some butterfly ones for the night.

we are really please with Gracies progress in just a few weeks and have many things that we hope to do over the next few months to help her such as a trip to Bobath in London in November and lots of equipment to help her, she is onlymaking this progress because of each and every one of you that has helped us get her here thankyou so much xx